The Patient Information Needs Map
A customizable resource for precision medicine advocates and champions to guide and organize information resources and other ongoing efforts to support patient education and awareness.
Supporting Patient Education and Awareness
This co-created customizable tool aims to support Precision Medicine champions, including healthcare professionals, to develop information resources for individual patients.
This resource can be used for any type of condition, in any geography, across the patient care pathway. It is:
Co-developed
The tool was co-developed with a large community of stakeholders (more than 20 people from 14 organizations), representing patient associations, industry, academics, researchers and external experts
Simple to use by anyone
Who can use the tool? Simple. Anyone working on precision medicine advocacy projects (for example, patient advocates with any level of experience, healthcare professionals etc)
Suitable for all projects
You can use it for any type of condition, in any geography, across the patient care pathway
Built on good practices
Built on good practices resources that outline the precision medicine patient pathway (including DiCE, Personalized Medicine Coalition, DeciBIO, IQVIA, MacMillan)