Governance

Uniting our community to improve patient outcomes on the ground

Shared leadership for better and sustainable impact

Only a partnership involving all major stakeholder groups can effectively address the challenges of precision medicine. Based on this belief the participation of founding members representing patient advocacy groups and industry was secured. In addition to this, there is an ongoing effort to seek and add new members from the regulatory, medical, non-profit and academic sectors and beyond, as well as reinforce the participation of the patient community among those who have an interest, expertise in and impact on the different aspects of precision medicine.


The Program is governed by a Board, which represents members and makes the major strategic decisions for the organization.

In order to maintain a patient-centric approach and ensure financial and strategic independence of the Program, Members have decided to cap the participation of industry at maximum 40% on the Board. Equally, a minimum representation of 40% of patients is required. Other stakeholder types such as healthcare professionals are also represented on the Board. The representation requirements may evolve as the program matures to reinforce the balanced and shared decision making approach.

Read more about the FT3 Governance here.

Key principles for collaborative leadership

Balanced representation of stakeholders for transparency, inclusiveness, diversity and credibility. Only a balanced inclusion of all stakeholders, also reflected in decision-making structures and agile operations, deliver results.

The Program is non-competitive and does not exist to promote the interests of any specific organization, their brands or products.

Members and contributors must always work for the interest of the common goal, leaving individual interests at the door.​

The FT3 governance

Inclusive and expert advice

The Board

Max. 18 seats excl. ExCO
Minimum
40%
of patient organizations

Maximum
40%
of industry members

Duty of Loyalty

Each board member must put the interests of the Program before their personal and professional interests when acting on behalf of the Program in a decision-making capacity. The Program needs to come first.

Member Organizations

Patient representatives

Patient organizations

Pharma & diagnostics companies

HCPs & Medical societies

Payers

HTA bodies

Regulators

Funding and/or participating in kind

Program’s Community

Members and external stakeholders

Agile Operations

Executive Committee (3 seats)

Program Executive Director

Collaborative Program Management

Experts

Medical

Legal

Regulatory

Patient representatives

Ethic

Payer

Communication

Secretariat

Communication

Finance

Advocacy

Reporting & transparency

Deliverables & Outputs

May be created:

Ethics Committee
Scientific Advisory Committee