Visualizing the patient pathway in precision medicine: the identification of barriers and best practices across different stakeholder groups
Precision medicine is here and ready to improve outcomes, yet patients cannot access the necessary tools and supports, the recent PEOF heard Precision medicine represents a paradigm shift in the treatment of many of the most serious diseases, with the promise of tailored therapies and much-enhanced outcomes. Yet global access to this approach remains patchy […]
Could genetic testing unlock treatments for Cancer of Unknown Primary?
World CUP Week: Researchers are screening hundreds of tumour genes in search of drug targets that could open the door to more personalised cancer care Most cancers are named – and treated – according to where the first tumour is found. But for some patients, tumours are detected in various organs of the body but […]
“We’re at a critical moment for precision medicine in cancer care”
Cancer will only be beaten when the genomic drivers of a person’s cancer are understood and targeted, according to Brian Tomlinson of Foundation Medicine Tell me about yourself and your organization Foundation Medicine is a molecular information company dedicated to transforming cancer care through a deep understanding of the genomic changes that contribute to each […]
‘We need truly collaborative initiatives like this’
Begonya Nafria Escalera of Sant Joan de Déu Children’s Hospital in Barcelona has both a professional and personal interest in ensuring that patients’ needs are met by personalized medicine Tell me about yourself and your organization I’m working at Sant Joan de Déu Children’s Hospital as Patient Engagement in Research Coordinator. My area of responsibility […]
‘I am on a mission to fix that’
Susan McClure, founder and CEO of Genome Creative, says that while clinical adoption of targeted treatments remains low, multi-stakeholder efforts such as FT3 can change this Tell us more about your organization We specialize in content strategy, editorial and design updates, event creation and management, websites, podcasts, apps, and marketing. Specifically, we work with partners […]
‘True personalized medicine should be the goal’
Dr Benedikt Westphalen is a medical oncologist and molecular biologist, focusing on gastrointestinal oncology and precision oncology. For the last four years, he has been building a precision oncology program at the University of Munich.
“Every day matters”: What it means to have a rare disease
Patients with rare disease often do not have a voice and rely on strong support from family, carers and trusted advocates. On Rare Disease Day 2021, FT3 speaks to advocates for those with a rare disease, who outline the barriers and roadblocks to obtaining a prompt diagnosis and the best possible personalized treatment. Warnyta Minnaard […]
Why accessing precision medicine can be an impossible task for those with a rare disease
February 28 2021 marks the fourteenth international Rare Disease Day coordinated by EURORDIS. This global event offers patients, families and caregivers the opportunity to raise awareness and share their experiences of living with a rare disease and the arduous journey they often face as they seek diagnosis and treatment for their condition. It is thought […]
‘Personalized medicine is more than just medicine’
FT3 is unique in having patients as a fundamental and essential partner, says project member Durhane Wong-Rieger, President & CEO of the Canadian Organization for Rare Disorders Tell us more about yourself. I am President & CEO of the Canadian Organization for Rare Disorders (CORD). As head of a global alliance of rare disease patient […]
The true meaning of personalized medicine
A recent virtual workshop sought to determine the needs of patients when it comes to personalized or precision medicine. Danielle Barron reports What is personalized medicine, and what does it mean for the everyday reality of patients? A uniquely designed workshop at the recent Patient Engagement Open Forum sought to answer these questions by seeking […]