Guiding Informed Decisions
A suite of customizable resources, created by and for patient advocates and organizations, to support patients and empower informed decision-making.
About the Adaptable Educational Resources Suite
Patient organizations and advocates play a crucial role in helping patients make informed decisions throughout their healthcare journey. To support these efforts, the FT3 community developed the Adaptable Educational Resources Suite, a collection of flexible materials designed to help patients navigate key aspects of their care. These resources provide guidance on asking the right questions during medical appointments, understanding biomarker testing and its role in diagnosis and treatment, and exploring targeted therapy options.
Designed to be tailored to different geographic contexts and disease areas, this suite ensures accessibility and relevance across diverse healthcare settings. We are now collaborating with partners to pilot these resources, gather insights, and ensure they meet specific local needs.
Access & Customize These Resources for Your Community Needs
Browse the tabs below to learn more about each resource, including its purpose, real-world use cases and stories, and pilot implementations.
The Precision Medicine Questions & Answers (Q&A)
A co-created tool for patient advocates, organizations and healthcare professionals, to develop or update existing precision medicine Questions & Answers resources for patients.
This resource aims to support patient advocates and organizations in helping patients ask the right questions at their medical appointments. It includes a series of questions that patients can ask their health provider at different moments, encompassing stages ranging from recent diagnosis to relapse.
Customizable and adaptable, it significantly simplifies the development of new educational resources for their patient community.
This resource can be used to:
Update existing Q&A resources, ensuring the crucial elements related to precision medicine are covered;
Create a new Q&A resource by adapting this backbone resource to the relevant country and disease.
Discover all generic resources that can be used as such:
Discover all adapted resources from the Precision Medicine Questions & Answers (Q&A) Resource Builder
Any patient advocate, organization or healthcare providers can adapt this resource to a specific condition and/or local context to help their patient community better understand the options in their care pathway!
Co-Creating a Common Framework Based on Best Practices
Because the precision medicine landscape is fragmented. There is a lack of common understanding and standardization even for core issues, like the patient pathways or frequent needs for information.
Through the Patient Engagement Open Forum session, co-creation activities, and working group calls we have identified that a common framework is needed to help standardize how information needs are identified and addressed.
To reduce duplication of effort and time investment of the advocacy community, we co-creating this tool based on existing best practices.
Meet the people and organizations behind this tool
Guide on Biomarker Testing for Cancer Treatment
A co-created guide by and for patient advocates and organizations, dedicated to empowering patients with essential biomarker testing information.
This resource aims to simplify access to biomarker testing information, prevent the need to start from scratch, and support patient advocates and organizations in helping patients find the right information and make informed decisions and actions at the right time regarding biomarker testing.
The guide on biomarker testing for cancer treatment features:
Extensive Resources
Provides a wealth of information on biomarker testing.
Established Best Practices
Based on proven methods so you don’t have to start from scratch.
Plain Language
Designed to be easily understood by all.
Flexible Format
Easy to adapt and use.
It can be used to:
Update existing biomarker testing resources, ensuring that all the crucial elements are covered;
Create a new biomarker testing resource by adapting this backbone resource to a country and/or a disease.
This adaptable resource is available in multiple languages
ALK+ UK adapted the Biomarker Testing for Cancer Treatment resource.
Read a testimonial from Debra Montague, who shares insights on the resource’s value and impact and access the adapted resource here.
Cancer care is supposed to involve shared decision making, so the patient needs to be informed very well in order to contribute to those decisions. We are giving them the tools to become an expert in their own condition.
Debra Montague
Chairman and Founder of ALK Positive UK
Discover all adapted resources from the Biomarker Testing Guide
Interested in adapting this resource?
Building on Best Practices Through Community Collaboration
FT3 contributors collaborated in the identification of good practices and learnings with the aim of making them replicable through practical and actionable tools and resources. By doing so, FT3 acts as a catalyst of best practices: we aggregate them and build on them through multi-stakeholder collaboration, and we make them available by reducing the burden of developing a new resource.
This is the result of the aggregation of resources originally developed by our friends LUNGevity, Lung Cancer Europe, the National Cancer Institute, and the Research Advocacy Network which emerged as good resources in terms of scientific credibility, patient centricity, plain language, and ease of use. We thank them for their good practice inspiration.
Meet the people behind this tool
Guide on Targeted Therapy for Cancer Treatment
A customizable and adaptable guide by and for patient advocates and organizations to empower patients with essential information about targeted therapies.
This co-created resource aims to support patient advocates and organizations in helping patients find the right information to make informed decisions at the right time regarding targeted therapy.
About this resource
Lay language information about targeted therapy
Easily adapted format with ”how to use” instructions
Best practices and essential information in one place
Customizable and adaptable to a specific disease and location
Co-created with patient ORGs, academia, HCPs and industry
It can support you in:
Updating existing resources on targeted therapies
Creating a new targeted therapy resource for your patient community
Discover all adapted resources from the Targeted Therapy for Cancer Treatment Guide
Any patient advocate, organization or healthcare providers can adapt this resource to a specific condition and/or local context to help their patient community better understand the options in their care pathway!
Building on Best Practices and Learnings from the Global Community
This resource has been created by identifying the best practices and available learnings & making them replicable. Scientific credibility, patient centricity, plain language, and ease of use were the main criteria behind the best practices selection.
We thank all our partners for their contribution and inspiration.
This resource comes from the collation of resources originally developed by:
